The Annemarie Opprecht-Foundation was established in 1998 and sponsored by Annemarie Opprecht, a Swiss philantropist. The specific aim of the Foundation is to promote medical, or medical related research in the field of Parkinson's disease on an international level.

The Foundation presents, at regular intervals, the Annemarie Opprecht Parkinson Award. Awarded every 3 to 6 years, the prize varies between 50,000 and 100,000 Swiss francs. Considered are papers presenting significant results or findings in all areas of research in the field of Parkinson's disease (e.g. Basic Sciences, Epidemiology, Treatment, Social impact, Economical aspects).

Secretariate:
Gruber & Brücker, Attorneys at Law
Lidostrasse 6
P.O. Box
CH-6000 Lucerne 15
Switzerland

Tel: 0041 41 375 35 00
Fax: 0041 41 375 35 05
Email:marco.gruber@nextportal.ch

EuroGenGuide is a three-year project funded by the European Commission for Life Sciences and Biotechnology, as part of the Sixth Framework Programme for Research and Technological Development, and co-ordinated from London by the Genetic Interest Group.

The aim of EuroGenGuide is to provide accurate, high-quality information about genetic testing and research in Europe, for use by all those living in the continent to whom information about genetics is relevant, whether as a patient, a relative of a patient, or a health professional interested in providing genetic services to their patients. The core information on the site has been divided into a section for the public and patients, and a section for health professionals.

If you have an enquiry about EuroGenGuide, please contact us via the details below:

Alex McKeown - EuroGenGuide Manager

Genetic Interest Group Ltd
Unit 4d, Leroy House
436 Essex Road
London N1 3QP

Tel: +44 (0) 207 704 3141
Email: enquiries@eurogenguide.eu

The European Neurological Society (ENS) was launched in 1986. Modelled after the American Academy of neurology, in which teaching courses at its annual meeting play a prominent role, members can be found among clinicians and scientists whose interest is directed towards practice, teaching or research in neurology and cognate fields.

Today the ENS has a membership of about 2300 individual neurologists from 60 countries worldwide.

The official journal of the society is The Journal of Neurology which is published by Steinkopff Verlag, Germany.

European Neurological Society
Association House
Postfach
4002 Basel
Switzerland

Tel: +41 61 691 51 11
Fax: +41 61 686 77 88
Email: info@ensinfo.org

The Life in Motion Resource Center is part of a nationwide awareness campaign organised by WE MOVE that includes downloadable patient education brochures and information on movement disorders.

The Web site also includes information on the Life in Motion campaign, Life in Motion coalition members, an online press room, a glossary of terms, as well as links to the WE MOVE Web site, www.wemove.org.

The Cure Parkinson’s Trust is a patient led charity that funds research which will have an impact on the lives of people with Parkinson’s, with the hope of an eventual cure for the condition. The Cure Parkinson’s Trust was founded in 2005 with the clear goal of finding a cure for Parkinson’s disease by investing in under resourced and under funded projects that offer a real hope of a cure in the future. Its primary role is identifying, funding and evaluating research projects, as well as hosting scientific forums to bring together relevant scientists within the field, to discuss key areas of research and technology.

The Trust’s fundraising arm is called ‘Movers and Shakers’, a name adopted by the co-founders.

The Vestry
1 St Clement's Court
London
EC4N 7HB
United Kingdom

Tel: +44 (0) 20 7929 7656
Email: cptinfo@cureparkinsons.org.uk

LSVT Global specializes in the development of treatments for the physical therapy and speech communication needs of patients with Parkinson disease as well as other neurological disorders.

LSVT Global
PMB 303
5575 East River Road, Suite 121
Tucson, AZ 85750-6737
USA

Tel: 1-888-606-5788 (phone)
Fax: 1-520-615-8559 (fax)
E-mail:info@lsvtglobal.com

The National Institute for Health and Clinical Excellence (NICE) is the independent organisation responsible for providing national guidance on the promotion of good health and the prevention and treatment of ill health.

NICE produces guidance in three areas of health:

• public health - guidance on the promotion of good health and the prevention of ill health for those working in the NHS, local authorities and the wider public and voluntary sector 
• health technologies - guidance on the use of new and existing medicines, treatments and procedures within the NHS 
• clinical practice - guidance on the appropriate treatment and care of people with specific diseases and conditions within the NHS.

NICE guidance is developed using the expertise of the NHS and the wider healthcare community including NHS staff, healthcare professionals, patients and carers, industry and the academic world.

The NICE clinical guideline on Parkinson's disease covers:

• the diagnosis of Parkinson's disease and checking the diagnosis regularly
• the way people with Parkinson's disease should receive information
• the medicines that can be used
• other ways of helping with symptoms
• how to care for people whose mental health is affected
• the care people with Parkinson's disease should receive at the end of their life.

National Institute for Health and Clinical Excellence
MidCity Place
71 High Holborn
London
WC1V 6NA
United Kingdom

Tel: +44 (0)845 003 7780
Fax: +44 (0)845 003 7784
Email: nice@nice.org.uk

The LSVT^® Foundation is a non-profit 501c3 organization instituted in 1997 and dedicated to improving communication in individuals with neurological disorders, with a specialty in Parkinson disease.

The mission of the LSVT Foundation is to insure that speech treatment has a prominent role in the care of patients with Parkinson disease and other neural conditions. In speech treatment, unlike drug or surgical treatments, the locus of control belongs to the patient. Thus, positive speech treatment effects carry the added benefit of improved self-confidence and some measure of control over a significant symptom of Parkinson disease.

The LSVT® Foundation operates on funds generated from LSVT® Training and Certification Workshops and donations. Ninety percent of our efforts are on a volunteer basis.

Email: info@lsvt.org

The Movement Disorder Society are an international professional society invested in the research and care of patients with Movement Disorders, including Parkinson's disease, Parkinsonism, Dystonia, Chorea, Huntington's disease, Ataxia, Tremor, Myoclonus, Startle, Tics, Tourette syndrome, Restless legs syndrome and Gait disorders.

The Movement Disorder Society was founded in 1985 on the initiative of Professors Stanley Fahn and C. David Marsden, whose leadership and vision guided the expansion of clinical expertise and research in this field. This not-for-profit organization merged in 1992 with the International Medical Society for Motor Disturbances. Publication of the journal Movement Disorders began in 1986, and the first International Congress was held in 1990.

International Secretariat
555 East Wells Street, Suite 1100
Milwaukee, WI 53202-3823
USA

Tel:+1 414-276-2145
Fax:+1 414-276-3349
Email:info@movementdisorders.org

Oxford Functional Neurosurgery is dedicated to the surgical alleviation of movement disorders such as Parkinson’s disease, dystonia, tremor and neuropathic pain syndromes such as phantom limb pain, anaesthesia dolorosa and post stroke pain. The service offers deep brain stimulation or lesional procedures as appropriate.

Oxford Functional Neurosurgery has it’s origins in 1993 when Professor Aziz initiated functional surgery for movement disorders in Oxford. At that time Oxford was virtually the only UK centre with such a service.

Tel: +44 (0) 1865 228425
Fax: +44 (0) 1865 224786
Email: info@oxfordfunctionalneurosurgery.org.uk

The Parkinson Pipeline Project is comprised of people with Parkinson’s disease who volunteer their time, talent, and expertise; and share their unique patient perspective to help bring better therapies, more quickly, to people who need them.  Through education, consultation, and participation with all stakeholders - including industry and the FDA - the Parkinson Pipeline Project hopes to increase clinical trial participation and accelerate approved treatment options.

Birmingham Clinical Trials Unit (BCTU)

The PD MED Study is a large, simple, "real-life" trial that aims to determine much more reliably which class of drugs provides the most effective control, with the fewest side-effects, for both early and later Parkinson's disease.

Patients with early Parkinson's are randomised between DA, MAOBI and LD alone, with the option to omit either the MAOBI or LD alone arm. Those with later Parkinson's disease are randomised between COMTI, DA and MAOBI, with the option to omit either the DA or the MAOBI arm. The main outcome measure is patient-rated quality of life, using the PDQ-39 scale, which assesses all aspects of the patient’s life, and is sensitive to changes considered important to patients but not identified by clinical ratings.

The study is funded by a grant from the NHS Health Technology Assessment Programme and is supported by the European Parkinson's Disease Association (EPDA), the Parkinson's Disease Society (PDS) and the Parkinson's Disease Nurse Specialist Association (PDNSA).

Tel: +44 (0) 121 687 2315
Fax: +44 (0) 121 687 2313
Email: PD-Trial@contacts.bham.ac.uk

The 3 year Rescue project, funded by the European Commission (2002-2005), investigated cueing as a rehabilitation strategy in Parkinson's disease. Details about the researchers and the published outputs of the team are available on the project's website. The website also provides background on the principles of cueing and information on cueing for people with Parkinson's disease and their carers: www.rescueproject.org/pubs/info_sheets.htm

A CD-Rom for therapists, outlining the cueing therapy programme used in the successful Rescue randomised clinical trial, is also available from the site.

Email: hs.rescue@northumbria.ac.uk

WE MOVEis an Internet based resource for movement disorder information and education. Since 1991, this not-for-profit organization has been educating and informing patients, professionals and the public about the latest clinical advances, management and treatment options for neurologic movement disorders.

Educational Programs and Resources for Professionals

WE MOVE's mission is to facilitate the communication of emerging clinical advances and therapeutic approaches to the management and treatment of movement disorders. WE MOVE develops up-to-date training programs and comprehensive, interactive teaching materials to assist professionals in deepening their understanding of neurologic movement disorders...their pathophysiology, etiology, differential diagnosis and state-of-the-art interventions.

204 West 84th Street
New York
NY 10024
USA

Email:wemove@wemove.org

The mission of the Young Onset Parkinson's Association (YOPA) is to educate the American public and politicians on issues relating to Parkinson's disease, specifically those issues associated with the unique cases of young onset patients. YOPA strives to provide education and awareness on the subject of young onset Parkinson's disease worldwide. They help to promote all current, positive legislation and assist in the lobbying efforts to counter opposing opinions.

People With Parkinson's, especially young onset, may wish to visit this site, at the invitation of Thomas Berdine, President Young Onset Parkinson's Association (YOPA) to plot their location on their world guest map.

2910 Commercial Center Boulevard Box 106
Katy
Texas 77494
USA

Email: yopaboard@yopa.org