Tuesday, January 06, 2009

PD Resources

 

Surveys

Counting the cost

Counting the cost

Second feature on the European participation in Life Survey focusing on patient quality of life, EPDA Plus examines the effects employment and finance have on younger people with Parkinson’s as they strive to balance work and lifestlyle considerations with living with a progressive neurological disease.

  • Source: EPDA Plus - Spring 2008; 7: 20-21 (May 2008)
  • Language: English
Vital signs

Vital signs

The results of an EPDA survey help to increase the understanding of what it is really like to live with Parkinson’s disease – both day and night.

  • Author: Nicola O’Connell
  • Source: EPDA Plus - Spring 2008; 7: 8-9 (May 2008)
  • Language: English
Life with Parkinson's today

Life with Parkinson's today - room for improvement

The results of the UK's largest* ever survey of people with Parkinson's and carers of the condition.

  • Publisher: Parkinson's Disease Society (UK) (7 April 2008)
  • Language: English

 

Also available for download:

*Completed by more than 13,000 members of the PDS

Quality of life changes in PD: what will PDLIFE tell us?

Quality of life changes in PD: what will PDLIFE tell us?

Report on the aims and achievements of the PDLIFE study.

  • Author: Lynn Taurah, Alison Forbes, and K Ray Chaudhuri
  • Source: European Parkinson’s Nurses Network (EPNN) Journal 2006; 6: 12-13 (February 2006)
  • Language: English
Taking Charge - A Guide to Living with Parkinson's

PD Life Project Update

In June 1998, SmithKline Beecham (GSK) provided the EPDA with funds to develop a 'Patient Analysis and Tracking system' (Drug Profiling), which the EPDA Medical Advisory Board approved. After two false starts, the project was renamed PD Life and commenced, as a six month UK pilot.

  • Source: EPDA (August 2002)
  • Language: English
EPDA Participation in Life Survey 1999

EPDA Participation in Life Survey Results 1999

  • Source: EPDA (July 1999)
  • Language: English

 

 

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