Tuesday, January 06, 2009

PD Resources

 

For young onset Parkinson's

Making the Connection Between Brain and Behavior: Coping with Parkinson's Disease

Making the Connection Between Brain and Behavior: Coping with Parkinson's Disease

  • Author: Joseph Friedman
  • Paperback: 250 pages
  • Publisher: Demos; 1 edition (1 Feb 2008)
  • Language: English
  • ISBN-10: 1932603425
  • ISBN-13: 978-1932603422
Ask the Expert: Sex Therapy & Sexual Health Counseling

Ask the Expert: Sex Therapy & Sexual Health Counseling

  • Publisher: Parkinson Post Canada (Winter 2005)
  • Language: English

 

When Parkinson’s Strikes Early: Voices, Choices, Resources and Treatment

When Parkinson’s Strikes Early: Voices, Choices, Resources and Treatment

  • Author: Barbara Blake-Krebs and Linda Herman
  • Paperback: 288 pages
  • Publisher: HUNTER HOUSE; 1 edition (21 Mar 2002)
  • Language: English
  • ISBN-10: 0897933400
  • ISBN-13: 978-0897933407

Websites

The Cure Parkinson's Trust

Website: www.cureparkinsons.org.uk

 

The Cure Parkinson’s Trust is a patient led charity that funds research which will have an impact on the lives of people with Parkinson’s, with the hope of an eventual cure for the condition. The Cure Parkinson’s Trust was founded in 2005 with the clear goal of finding a cure for Parkinson’s disease by investing in under resourced and under funded projects that offer a real hope of a cure in the future. Its primary role is identifying, funding and evaluating research projects, as well as hosting scientific forums to bring together relevant scientists within the field, to discuss key areas of research and technology.

The Trust’s fundraising arm is called ‘Movers and Shakers’, a name adopted by the co-founders.

The Vestry
1 St Clement's Court
London
EC4N 7HB
United Kingdom

Tel: +44 (0) 20 7929 7656
Email: cptinfo@cureparkinsons.org.uk

JoPark.be

Website: www.jopark.be

 

JoPark stands for Jong en Parkinson (Young and Parkinsonian). This Belgium interactive site provides chatrooms where people with Parkinson's can meet each other.

Young Onset Parkinson's Association (YOPA)

Website: www.yopa.org

 

The mission of the Young Onset Parkinson's Association (YOPA) is to educate the American public and politicians on issues relating to Parkinson's disease, specifically those issues associated with the unique cases of young onset patients. YOPA strives to provide education and awareness on the subject of young onset Parkinson's disease worldwide. They help to promote all current, positive legislation and assist in the lobbying efforts to counter opposing opinions.

People With Parkinson's, especially young onset, may wish to visit this site, at the invitation of Thomas Berdine, President Young Onset Parkinson's Association (YOPA) to plot their location on their world guest map.

2910 Commercial Center Boulevard Box 106
Katy
Texas 77494
USA

Email: yopaboard@yopa.org

YoungParkinsons.com

Website: www.youngparkinsons.com

 

Thomas Berdine is the founder of YoungParkinsons.com, a New Mexico State Representative for the Parkinson's Action Network, and the President of the Young Onset Parkinson's Association (YOPA). He was medically retired from the US Air Force after a 16 year career in October of 2001 due to the effects of Parkinson's disease. He was officially diagnosed in March of 2001. He now dedicates the majority of his time to Parkinson's advocacy.

Email:youngparkinsons@youngparkinsons.com

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