If you want to be considered for surgery, you need to discuss this further with your doctor or Parkinson’s disease nurse specialist if you have one. What is available and referral procedures will depend on the country that you live in.
The Parkinson’s association in your country may also be able to provide information based on members’ experiences. The EPDA website [www.epda.eu.com] contains the contact details for European Parkinson's disease organisations and international Parkinson’s organisations.
Your Parkinson’s association may also advise and provide information and educational opportunities for health professionals.
Website:www.activadbs.com
A Medtronic US sponsored website providing information on the Activa® deep brain stimulation therapy.
Activa® DBS is a surgical treatment that can improve some of the symptoms of Parkinson's disease.
Website:www.brainandspine.org.uk
The Brain and Spine Foundation was set up in 1992 to develop research, education and information programmes aimed at improving the prevention, treatment and care of people affected by disorders of the brain and spine and to stimulate the greater allocation of resources across all neurological disorders.
Brain and Spine Foundation
7 Winchester House
Cranmer Road
Kennington Park
London
SW9 6EJ
United Kingdom
Tel: 020 7793 5900
Helpline: 0808 808 1000
Fax: 020 7793 5939
email: info@brainandspine.org.uk
Website:www.parkinsonsurgery.org
The Center for Movement Disorder Surgery at Columbia-Presbyterian Medical Center was established in 1998. The Center is a collaboration between the Departments of Neurology and Neurological Surgery of Columbia University. Its primary mission is to provide advanced state-of-the-art neurosurgical treatments for patients with disabling neurological disorders: Parkinson’s disease, essential tremor, dystonia, and other movement disorders.
The Center for Movement Disorder Surgery provides complete care to all patients through every stage of the surgical procedures, from patient education and pre-operative screening, to intra-operative brain mapping and surgery, to careful post-operative care and stimulator adjustments.
The Center for Movement Disorder Surgery is located at the Neurological Institute of New York on the medical campus of Columbia University. The operations are performed at Milstein Hospital, Columbia-Presbyterian Medical Center.
710 West 168th Street
(between Fort Washington and Haven Ave)
3rd Floor
New York
NY 10032
USA
Website:www.pdsurg.bham.ac.uk
Birmingham Clinical Trials Unit (BCTU)
The PD SURG trial will evaluate the role of subthalamic (STN) and pallidal (GPi) surgery, by either stimulation or lesioning, compared to medical therapy (with surgical intervention delayed as long as possible) in patients with advanced Parkinson's disease that is not adequately controlled by their current medical treatment. Patients allocated to medical therapy will receive whatever drug treatment is considered appropriate (this may include continuous apomorphine infusion). Although surgery may produce clear and rapid clinical improvements, it is also important to evaluate the safety and long-term effects of the procedure and to use endpoints of relevance to the patient
PDSURG is a large, simple, “real-life” trial that will determine reliably whether early surgery is more effective than deferred surgery for advanced Parkinson's.
The PD SURG trial is sponsored by generous grants from the UK Medical Research Council and the Parkinson's Disease Society of the UK.
If you would like further information about the PD SURG trial please contact:
Dr Caroline Rick
PD SURG Trial Co-ordinator
Tel: +44 (0)121 687 2331
Fax: +44 (0)121 687 2313
Email: PD-Trials@bham.ac.uk
Website:www.wemove.org
WE MOVEis an Internet based resource for movement disorder information and education. Since 1991, this not-for-profit organization has been educating and informing patients, professionals and the public about the latest clinical advances, management and treatment options for neurologic movement disorders.
WE MOVE's mission is to facilitate the communication of emerging clinical advances and therapeutic approaches to the management and treatment of movement disorders. WE MOVE develops up-to-date training programs and comprehensive, interactive teaching materials to assist professionals in deepening their understanding of neurologic movement disorders...their pathophysiology, etiology, differential diagnosis and state-of-the-art interventions.
204 West 84th Street
New York
NY 10024
USA
Email:wemove@wemove.org
