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Thursday, 09 February 2012
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Parkinson's disease (PD)
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Frequently asked questions (FAQ)
Parkinson's disease
PD symptoms
Managing your Parkinson's
Complementary therapies
Medication
Surgical treatments
Daily living
Quality of life issues
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Frequently asked questions (FAQs)
Parkinson's disease
Brain scan: I know Parkinson's is something to do with the brain and I thought the doctor would send me for a brain scan ...
Causes: My father's Parkinson's appeared after he had had a bad accident at work and I have met other people with similar ...
Causes: What causes the brain to stop making dopamine?
Diagnosis: My Parkinson's was diagnosed four years ago but I had been seeing my doctor regularly for two years before that ...
Genetics: Does Parkinson's have a genetic component even though it is not hereditary?
Genetics: I hear that there has been some progress in understanding the role of genetics in Parkinson's. Is this true?
Heredity: I know that they say Parkinson's is not hereditary but I have it and so do two of my cousins. How can the doctors ...
Idiopathic Parkinson's: I saw the word 'idiopathic' written before Parkinson's in my husband's medical notes. What does it mean?
Young onset: My sister is 37 and has been having trouble with her walking for some time. We thought it was a trapped nerve ...
Parkinson's disease symptoms
Cognitive problems: My husband has had Parkinson's for the last six years but he has also developed some serious mental and ...
Constipation: I prefer not to take medicines unless absolutely necessary but have quite a lot of trouble with constipation ...
Dementia: Is there a link between Parkinson's and Alzheimer's?
Dementia: My mother, aged seventy-eight, developed difficulties with her memory and features of parkinsonism – particularly ...
Dyskinesia: Why do some people with Parkinson's suffer from excessive movements of the head and body?
Falls: How can I reduce the risks of falling in the house?
Falls: What are the rules for turning round safely?
Fatigue: My husband, diagnosed earlier this year, gets tired easily. Should I encourage him to rest as much as possible?
General: I know at least three people who have Parkinson's, but they don't appear to have the same thing at all. Why are ...
Pain: My husband who has Parkinson's is 82 and has developed a new and distressing symptom. Every afternoon he starts ...
Sleeping and turning: My wife gets really frustrated by her inability to turn over in bed and it's causing her to have ...
Stress: Are my symptoms likely to be worse when I am feeling under stress?
Tremor: I have a tremor in one hand. Will it spread? Should I learn to write with my other hand?
Tremor: My mother has just been diagnosed with Parkinson's. I thought all people with Parkinson's had a tremor, but she ...
Managing your Parkinson's
Bathing: My mother, aged 75, loves to have a 'proper' bath but slipped recently in the bath and has lost confidence ...
Communication: I have many friends who live some distance away so I rely on the telephone. However, I find that ...
General: One of the most frustrating aspects of my Parkinson's is the way it interferes with so many everyday tasks ...
Getting out of a chair: Getting up out of a chair is a real problem – do you have any advice that will help?
Multidisciplinary team: How can I find a consultant specialising in Parkinson's?
Occupational therapy: Doing various tasks around the house is becoming more difficult and I feel we need some good advice ...
Physiotherapy: How important is good posture and what can I do to maintain it?
Physiotherapy: I have found that the physical therapies make an important contribution to my wellbeing. Is any research ...
Physiotherapy: I have read that exercise and physiotherapy are beneficial but my doctor says physiotherapy won't help. What ...
Speech: Are there particular exercises that I can do to help maintain my speech?
Speech: I find that my voice is very quiet, almost a whisper. People – even my family – find it difficult to hear me. Can ...
Medication
Apomorphine: I have been told that I may need to use a syringe driver for my apomorphine injections. What is a syringe driver?
Apomorphine: My consultant wants me to take apomorphine, but I am worried that it may be addictive ...
Clinical trials: How can I find out what drug trials are taking place and whether I am eligible to participate?
Clinical trials: I am very disabled and very frustrated, so I do not see why I should not be allowed to try some of the more ...
Clinical trials: What protection do volunteers have against injury or illness resulting from participation in clinical trials?
General: Can I adjust the tablets myself to suit my activities or how I am feeling?
General: Is it all right to take other kinds of medicines at the same time as those for Parkinson's?
General: What is the most frequently used drug treatment for Parkinson's?
General: Will having a pacemaker upset my Parkinson's medication?
Timing: How important is the timing of medication in Parkinson's?
Surgical treatments
Gene therapy: I have also heard about the prospect of gene therapy. How does this work?
Research: What other areas of current Parkinson's research seem most encouraging?
Complementary therapies
Finding a therapist: How can I find a practitioner in a particular complementary therapy?
Daily living
Carers: I have been looking after my wife for 22 years. Mostly I don't mind the work or the responsibility but I do hate ...
Carers: I have lived all my life with my mother who has Parkinson's and we are good friends as well as mother and daughter ...
Carers: My wife is now very immobile and I often have to ask our teenage daughter to help me lift her or to stay ...
Carers: We have a very happy marriage... Now my husband has got Parkinson's and I'm afraid I will resent having to give up ...
Communication: ... my 55-year-old husband's speech is now quite poor and I think that we need an alternative ...
Communication: I look in the mirror and find it difficult to recognise myself, as my face seems so lacking in expression ...
Communication: My father, who has come to live with us, has Parkinson's. I think he is settling own but he does not look ...
Communication: My husband's voice has become quite quiet. I am finding this a little difficult to deal with ...
Doctor relationship: ... my doctor seemed to imply that I was lucky it was Parkinson's. I don't feel at all lucky – how could he
Driving: My driving ability is now rather variable ... I don't want to lose my licence but I don't want to be ...
Family: ...one son is 14 and discipline is becoming a problem. Some of the rows have been particularly hurtful to my husband ..
Family: I have just been diagnosed with Parkinson's, but I don't want to tell my wife and family. What do you think I should do?
Family: I'm a hyperactive, rather impatient person and I'm feeling really bad about the way I snap at my wife who has ...
Family: My husband has had Parkinson's ... and is now quite disabled. But he does love to have our grandchildren come ...
Family:...My husband was the dominant, decision-making partner in our marriage and we both liked it that way. Now ...
Helpful hints: I have always enjoyed being a housewife and making my home attractive. Now people keep telling me to make it ...
Nutrition: I have heard that Vitamin B6 should be avoided by people with Parkinson's. Is this correct?
Nutrition: Can I eat chocolate while taking my Parkinson's medication?
Nutrition: I know that people with Parkinson's are advised to eat a balanced diet ... but this is difficult for me because ...
Nutrition: I like a drink (mostly beer) with my friends. Is this all right, or will it interfere with my Parkinson's medication?
Nutrition: Is it true that brown bread contains manganese and that this is a possible cause of Parkinson's and ...
Nutrition: Is it true that foods containing protein can make my wife's Parkinson's worse?
Nutrition: Is there anything in the idea that eating some kinds of beans can be beneficial?
Nutrition: My wife has had Parkinson's for 10 years and has recently lost a lot of weight. The doctor says that there is ...
Teeth: I have been told that good dental hygiene is important and I do try, but manipulating a toothbrush is now ...
Teeth: I live in a remote country village ... I urgently need dental treatment but have severe involuntary movements ...
Travel: Would it be unwise to try to travel by air to Canada on my own? I am still active but carrying cases would be a strain.
Work: I work as a teacher in a large inner city school. It's interesting and challenging work but also stressful ...
Work: What action should I take if I have problems in coping with my work or if my employer is not very understanding?
Quality of life issues
Activities: ... I seem to have given up lots of my old interests. Should I try to pick them up again now I'm ...
Exercise: My husband has always been interested in sport ... Are there any sports which seem particularly suitable for people ..
Exercise: One friend has told me that I will have to give up the active things I enjoy doing ... Another friend disagreed ...
General: I have just been diagnosed. It's a shock but I'd like to think there's something I can do to help myself ...
General: We love going to the theatre and concerts but my husband's Parkinson's is beginning to make this difficult ...