Carers and Parkinson's: Research papers

The development and validation of a quality of life measure for the carers of people with Parkinson's disease (the PDQ-Carer) Survey results suggest a 29-item questionnaire tapping four dimensions of quality of life (Social and Personal Activities, Anxiety and Depression, Self care, and Strain). Internal consistency reliability was found to be high for all domains. Data completeness was high. Construct validity (assessed by correlations with a generic measure of quality of life) confirmed prior hypotheses. 08 February 2012
Duodenal levodopa/carbidopa infusion therapy in patients with advanced PD leads to improvement in caregivers' stress and burden Conclusions: Duodenal levodopa infusion-related clinical improvement in patients with advanced PD leads to substantial reductions in caregivers' stress and burden. 17 January 2012
Optimizing care of residents with Parkinsonism in supervised facilities This paper aims to determine if the care of PWP in residential facilities could be improved by addressing staff knowledge on Parkinson related issues. 17 March 2010
Does age make a difference in caregiver strain? Comparison of young versus older caregivers in early-stage Parkinson's disease Despite the importance of age and developmental stage there is a paucity of research comparing young versus older spouse caregivers. This study compared the difference in negative aspects of strain and modulators of strain in young and older PD spouse caregivers. 03 March 2010
Who cares for the caregiver? In answering this question, this article discusses the needs of caregivers, presents various models of caregiving, and considers the nature of caregiver interventions. 01 December 2009
Do motor and nonmotor symptoms in PD patients predict caregiver strain and depression? Comparing findings with literature that is deemed clinically relevant for patient symptoms that predict caregiver strain, authors concluded that PD patient symptoms are important predictors of caregiver strain and depression. 15 July 2008

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