If you are unsure whether to tell family and friends that you have
Parkinson’s or you are not sure quite what to say and when, you may find it
helpful to speak with others who have had the same experience. Sharing your concerns
and discussing with others may help you in deciding what is best for you and
your family.
Your local or national Parkinson’s association will be able to
put you in contact with other people in a similar situation, or you could
contact a national counselling organisation who can listen to any worries and
help you work through them. You may also find it helpful to take your partner
or close family with you for your next doctor’s appointment so that they can
ask any questions they might have.
If you feel that family relationships are becoming difficult or that
children are not coping well, ask your doctor if they can arrange counselling
with a trained therapist or counsellor. This can be done individually or as a
family group, tailoring the advice to the age of any children involved.
Although some people feel uncertain about therapy, it can be very helpful and
in some countries it may even be state funded. Your doctor will be able to
advise and put you in contact with those involved.
