What are support groups?
There are many different types of support groups. But they can broadly be defined as a group of people who have something in common - in this context Parkinson’s disease - who meet personally or via the internet to discuss and exchange ideas and information, or voice concerns. The group may also include partners, family and/or carers.
Each group will be individual with differing activities, opportunities and capabilities. Meeting places vary and may include a hospital or other professional venue, a local hall or a member’s home. Sometimes there is a trained leader, such as a counsellor or social worker, although many Parkinson’s groups are run by people with the disease as well as experienced volunteers. Groups usually meet once a month, but many meet more regularly.
Most members find participating in a group supportive and a good way to interact with others in a similar position. However, if you prefer to be anonymous, some groups allow you to make contact by phone or using the internet rather than attending in person. Alternatively you could try 'networking' instead.
Most Parkinson’s organisations have support groups. To find out about how groups operate in your own country contact your national association - see the EPDA website www.epda.eu.com for European Parkinson's disease organisations and international Parkinson’s organisations.
