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EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association
EPDA - European Parkinsons Disease Association
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Symptoms and diagnosis

DLB shares some of the mental symptoms of Alzheimer’s disease and the motor symptoms of Parkinson’s.  But, despite these similarities, the exact symptoms and damage caused to the brain differ slightly in DLB.  This overlap in symptoms sometimes leads to misdiagnosis, so it is crucial to get an accurate diagnosis to ensure effective treatment.  This is particularly important as those with DLB can be sensitive to certain medications that may be used for other similar conditions.

One of the main symptoms of DLB is hallucinations, which occur in approximately 80% of people with this type of dementia.  These may be vivid and can cause irrational behaviour.  But, whilst they may be distressing to carers, the person hallucinating is often not distressed, in which case medical intervention may not be necessary.

The other symptoms of DLB are varied.  Some of the most common are:

  • poor memory
  • language problems
  • poor concentration
  • confusion
  • visual hallucinations, often involving children and/or animals
  • difficulty recognising familiar faces and objects
  • difficulty in carrying out simple everyday tasks
  • difficulty with spatial awareness
  • falls
  • depression
  • behavioural disturbances
  • disrupted sleep pattern and possibly nightmares
  • slowness of movement, stiffness, tremor and facial masking.

DLB is a progressive illness so symptoms tend to gradually worsen until they can affect daily activities and quality of life.  There can be quite marked fluctuations in attentiveness and alertness from hour-to-hour, day-to-day or even from month-to-month, which can make it more difficult to diagnose and can be frustrating for family and carers.

There are no specific tests for DLB.  Instead diagnosis is based on a detailed medical history and a full examination by an experienced doctor.  He or she will ask about when symptoms occur and how long they last, and they will also carry out some cognitive tests to assess the degree of difficulty with thinking and cognitive processes. 

As symptoms can fluctuate, several appointments may be needed and periods of observation in order to reach a diagnosis.  Key features that might lead to a confirmed diagnosis are the presence of visual hallucinations, extreme and rapid fluctuations in alertness and attention span, and the presence of motor symptoms such as tremor, stiffness and slowness.

It is important that any other causes of dementia are ruled out, so other tests, such as a brain scan to investigate stroke and blood tests may also be conducted.  Unfortunately a brain scan may show degeneration of the brain but will not show the presence of Lewy bodies as these can only be detected during a post-mortem examination.

Did you know?

DLB is also known under a variety of other names including Lewy body dementia (LBD), diffuse Lewy body disease (DLBD), cortical Lewy body disease (CLBD), and senile dementia of Lewy type.

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